Social sustainability, ethics and community engagement in (Indigenous) Sámi health research in the Nordics
Register on Zoom here.
This talk is by Jon Petter Stoor, Umeå University.
Indigenous peoples across the globe have been colonised, and for Indigenous peoples the academic research - including health research - have neither in the past nor in the present always represented a force doing only good. Ethical codes of conduct, guidelines and review systems have developed in order to address the power imbalances and ensure a future where Indigenous peoples and researchers are working together. In this talk, the spotlight will be turned to how these issues have developed in the Nordic countries during the last 10 years, focusing on Sámi health research.
Additional educational resources
Article:
Lavoie, J., Stoor, J. P., Cueva, K., Akearok, G. H., Rink, E., Larsen, C. V. L., & Gladun, E. (2022). Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines. International Indigenous Policy Journal, 13(1). doi:10.18584/iipj.2022.13.1.10928
Commission report:
Kvernmo, S., Strøm Bull, K., Broderstad, A., Rossvoll, M., Eliassen, B.-M., & Stoor, J. (2018). Proposal for Ethical Guidelines for Sámi Health Research and Research on Sámi Human Biological Material. Karasjok, Norway: Sámediggi/Sámi Parliament of Norway.
Discussion questions:
- To the extent that ethical review systems are needed in the Sámi context, do you believe they should be attributed to Sámi as vulnerable group and/or because of their political rights?
- Are you aware of other groups or peoples that may also benefit from specific ethical review systems for research? How does their situation compare to the Indigenous Sámi?
- How does ethical review systems contribute to social sustainability in the global health contexts you are familiar with?
- What are the limitations of ethical review systems in global health contexts?
- Are there instances where ethical review systems may not contribute to social sustainability or have counter-productive effects?
About Nordic Global Health Talks
Nordic Global Health Talks is a monthly webinar series about global health research at Nordic universities, hosted by the Nordic Network on Global Health. It is free and open to everyone interested in knowing more about Nordic global health research, education and collaborative projects.